Health: recent issues

Health: RSS feed -- recent issues

Negotiated pleasures in health-seeking lifestyles of participants of a health promoting intervention

Using focus group discussion data the present article examines argumentation around pleasure from food and physical activity among participants of a health promoting intervention. The article analyses the conflicts produced by pleasure-seeking and health enhancement, and the pursuits to solve these conflicts. Due to the discrepancy between the pleasure-seeking and health enhancement, pleasure was constructed not simply as a spontaneous experience but often as a planned and disciplined event. In respect of food, it was considered as appropriate to negotiate with different sources of pleasure and discipline one’s inclination to simply follow one’s taste. However, the tastiness of food was seen to have a value of its own and the need for pleasurable tastes was often experienced as beyond the individual’s control. We term food related pleasures ‘negotiated pleasures’ stressing the diverse strategies used by individuals while negotiating between food related pleasures and their overall health-seeking lifestyle. In respect of physical activity, life resembled more a mosaic where passivity was occasionally interrupted with disciplined physical activity that seldom produced pleasure. The scarcity of pleasures from physical activity as well as from healthy foods is a challenge for health promoters. Instead of building more self-controlling and self-denying individuals, it could be fruitful to focus health promoters’ attention to the enhancement of the experiences of pleasure. No matter how self-disciplined individuals are, if the dilemma of pleasure and health is not disentangled, lifestyle change will not last long.

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Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

In this article we focus on the experiences of 18 people with colorectal cancer, involved in a large longitudinal qualitative study to explore people’s experiences of cancer within the first year following diagnosis. Three depth interviews over the course of the year were carried out. During analysis, we drew on biographically informed approaches of understanding chronic illness, particularly the work of Bury and Charmaz, to explore the extent to which people within the first year following diagnosis experience cancer as biographically disruptive. We explore the biographical work that individuals carry out in the context of an assault on their identity and discuss the relevance of the concept biographical disruption for people who experience cancer as an acute, chronic and/or life-threatening condition. We also discuss the concept’s relevance for people who have lived a hard life and, hence, may anticipate these types of disruptions in their lives and experience their impact differently. We conclude that universal application of the concept biographical disruption to the experience of cancer within the first year of diagnosis is not appropriate. This study has implications for cancer services, in particular, the findings call for the development of interventions to support those people who experience cancer as an assault on their identity.

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'Do you feel sorry for him?': Gift relations in an HIV/AIDS on-line support forum

Sociologists have debated whether meaningful emotional relationships can be formed on-line. Drawing on Mauss’ concept of the gift, I explore how caregivers who participate in Hope, an on-line support forum dedicated to HIV/AIDS, incorporate moral percepts and understandings about ethics into their caregiving experiences. Their intense discussions on the essence of familial loyalties give rise to emotionally vibrant, empathic communities in which a socio-emotional economy is formulated. Can the Internet act as a moral space? How are concepts such as reciprocity, obligation, and commitment talked about and practiced in an on-line forum that exists in the ever present?

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Medical technocracies in liver transplantation: Drawing boundaries in medical practices

This article explores the ways in which the mastery of particular medical technologies plays a crucial role in drawing the boundaries between medical specialities, to form what we refer to as medical technocracies. It sets out, above all, to demonstrate how the frontiers between the different medical specialities act, on the one hand, as articulating mechanisms to be found in the division of medical work and, on the other hand, as barriers to the interaction of the various skills. Through a more searching study of the division of labour between surgeons and liver specialists (hepatologists) and surgeons and anaesthetics, we highlight the contrast between those two sets of relations.This illustrates the boundaries and articulation that exist between medical technocracies. The key theoretical guidelines are drawn from medical sociology and sociology of professions. The research methodology includes participant observation in a liver transplantation hospital unit and on site interviews. By using data gathered from physicians actually working in such areas where boundaries have been drawn between surgeons and anaesthesiologists and surgeons and liver specialists, we propose to understand how different medical skills are negotiated between the different groups and where the social arrangements are the result of processes of interaction between the different specialities, which are constantly being reorganized and redefined.

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Revisiting biographical disruption: Exploring individual embodied illness experience in people with terminal cancer

Biographical accounts of illness offer useful insights into the social and adaptive processes of living with chronic illness. Yet there are concerns that the underlying theoretical assumptions of a reflexive self seeking to maintain meaning may not reflect the lived experience of individuals. A narrative emphasis may neglect the importance of emotional/felt experiences; while an analytical focus on disruptive processes may not adequately reflect the totality of actual events. In this study, we explored how well biographical theory supports understanding of individual lived experience. Narratives from 19 individuals identified from General Practice lists with a terminal diagnosis of cancer were analysed using the holistic-form approach described by Lieblich. Participants described an ongoing process of living their life, ‘managing’ disruptive events and maintaining an overall sense of well-being (narrative form = biographical flow). For a minority, continuity was lost when people’s capacity to continue living their everyday lives was overwhelmed (narrative form = fracture). The identified emphasis was on individual creative capacity in the face of terminal illness, highlighting the importance of embodied experience in understanding outcome and need. Maintaining continuity was draining: exhaustion precipitated fracture and thus need for external help to restore continuity. By focusing on feelings associated with overall narrative form, rather than individual disruptive events, we highlight the context in which disruptive events are experienced, and individual perceptions of their relative importance. We conclude that combining narrative and emotion offers new insights into the value of understanding of biographical accounts of illness in the context of individual creative capacity. We discuss the possibilities for new approaches to clinical assessment and management of need.

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Reaching the parts that other theories and methods can't reach: How and why a policy-as-discourse approach can inform health-related policy

This article illustrates how conceptualizing policy-as-discourse offers opportunities for those with a vested interest in policy to ‘reach the parts that other theories and methods can’t reach’. First, it explores the dialogical relationship between theory and method in the context of policy analysis, summarizing contemporary writing on conceptualizing and analysing policy and drawing on the work of Bacchi to describe the theoretical underpinnings of three different policy representations along with methodological corollaries, research practices and disclosures about the world that flow from each. This involves reflecting on three different answers to the question ‘what is policy?’: considering how policy might be conceptualized and analysed under each and narrating the kind of research stories that emerge. Second, the article focuses on one of Bacchi’s representations — policy-as-discourse — to provide readers with a case study of this dialogical relationship and drawing on published research exploring the development of primary care research policy to illustrate what elements of discursive policy analysis might look like. Last, the article concludes by reflecting on the ways in which such an approach may (and may not) prove valuable in analysing health-related policy.

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Review: Taking care of yourself in later life: A qualitative study into the use of non-prescription medicines by people aged 60+

The last 40 years have witnessed substantial changes to the experience of later life. Health and life expectancy have improved and the emergence of a putative third age has allowed post-working life to move beyond being a residual social category to become an arena in which later life lifestyles can be constructed. Greater emphasis is now placed on expectations of self-agency and choice. Allied to this is the growing role of consumerism as a way of organizing key aspects of social life. Not only do these changes place increased emphasis on individual responsibility for health, but they also engage individuals in various forms of health consumerism.This study draws on these aspects of contemporary society to provide an explanatory framework for understanding older people’s engagement with, and consumption of non-prescription medicines. We present a qualitative study in which we interviewed 22 men and women aged 60 plus who were purchasing or interested in purchasing non-prescription medicines, including complementary and alternative medicines. Our findings suggest that the use of non-prescription medicines is both pluralistic and makeshift. Moreover, while this pluralism led to tensions with conventional bio-medicine, conventional bio-medicine still maintained the legitimacy of its knowledge base. Self-care using non-prescription medicines appeared more governed by hope than by evidence or knowledge of the treatments concerned.We conclude that such pluralism of approach reflects the growing consumerism in health and self-care and that older people may in fact be similar to other age groups in terms of their approach to such commodification.

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Health scares: Professional priorities

Currently, many health scholars are concerned about health scares. But what do they mean by the term ‘health scare’ — are health scares an identifiable phenomenon and how do we currently understand their causation and consequences? By collecting and analysing published articles about events considered to be health scares, this article maps the current views of scholars on their characteristics and causes. Results show that health scares are generally understood as events characterized by fears of catastrophic consequences but little actual mortality. However, the social and economic impacts of these events have often been severe. This survey shows that health scares can be usefully sorted into six categories, each with identifiable internal dynamics, suggesting different communications strategies to achieve resolution in each category. Using the social amplification of risk framework, the conditions under which risk signals were amplified were traced in general terms among major stakeholders. Simple causes for health scare events could not be identified, though some triggers did emerge. Importantly, public ignorance of real risk, media scaremongering and political inaction could be dismissed as primary explanations, though they were sometimes factors in scare events. Implications for risk communication and for future research on risk and public health are discussed.

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Quitting is not an option: An analysis of online diet talk between celiac disease patients

This is an empirical study of the way in which celiac disease patients manage the risk of gluten intake in their everyday life.The article examines naturally occurring conversational data in order to study how patients cope interactionally with constantly being at risk in their day-to-day living. They reject quitting the diet as a valid option, and instead construct a ‘diet world’ in which dietary transgression is presented as an integrated part of everyday life. In this way, patients can manage occasional diet lapses without putting the validity of the diet itself at stake. By examining how the gluten-free diet is treated in interaction, we find out more about the pre-existing everyday strategies that have to be taken into account when new therapies are being introduced.

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A 'healthy baby': The double imperative of preimplantation genetic diagnosis

This article reports from a study exploring the social processes, meanings and institutions that frame and produce ‘ethical problems’ and clinical dilemmas for practitioners, scientists and others working in the specialty of preimplantation genetic diagnosis (PGD). A major topic in the data was that, in contrast to IVF, the aim of PGD is to transfer to the woman’s womb only those embryos likely to be unaffected by serious genetic disorders; that is, to produce ‘healthy babies’. Staff described the complex processes through which embryos in each treatment cycle must meet a double imperative: they must be judged viable by embryologists and ‘unaffected’ by geneticists. In this article, we focus on some of the ethical, social and occupational issues for staff ensuing from PGD’s double imperative.

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'Do your best for me': The difficulties of finding a clinically effective endpoint in smoking cessation consultations in primary care

In recent years in the UK there has been a shift towards doctors practising preventative medicine. Research suggests, however, that doctors are more comfortable in their traditional role, and may be reluctant to engage in discussion of lifestyle issues with patients. In this article, we use data from GPs’ consultations about smoking, recorded prior to the availability of Nicotine Replacement Therapy on NHS prescription, to demonstrate how they attempt to negotiate behaviour change. Using a discursive analytic approach, and drawing particularly on some of the conversation analytic literature on advice giving, we suggest that there are two kinds of difficulties for doctors to overcome: an ambiguity about the interactional endpoint of a discussion about smoking; and the inability to offer ‘expert’ medical help. As a result, doctors struggle with following through their advice to stop in terms of talking about how to do it. We suggest that the efficacy of nicotine addiction treatments may be due not only to their clinical effects, but also because their prescription legitimizes the difficulty in stopping reported by most smokers as an appropriate problem for medical treatment. We discuss the implications of these findings for the management of smoking and other lifestyle issues within primary care consultations.

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The impact of early stroke on identity: A discourse analytic study

This article examines the ways in which sufferers talk about early stroke and the effects this chronic condition has on identity. Traditional research into chronic illness has largely used medical, psychiatric or cognitive models. We adopt a social constructionist perspective and use a discourse analytic methodology to study data collected via focus group interaction. Analysis of the data collected shows that participants displayed sensitivity about having acquired a potentially ‘damaged’ sense of self by mitigating negative features of their experiences. Participants also attended to the issue of whether their accounts were persuasive or believable. Some carers were present in these discussions. As a consequence, participants who had suffered a stroke displayed sensitivity to the way that carers might respond to mitigation of the negative aspects of stroke.

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From consumerism to active dependence: Patterns of medicines use and treatment decisions among patients with atopic dermatitis

In this article, findings from in-depth interviews with 12 people diagnosed with atopic dermatitis (AD) are described. The findings describe the range of strategies used to manage atopic dermatitis, including use of conventional medicines. A strong theme identified in informants’ accounts centred on concerns about the risks of illness and long-term use of conventional medicines, which acted as a strong incentive for patients to seek alternatives to conventional treatments. However, despite their significant efforts to do so, patients were eventually forced to return to and rely on conventional medicines because of their efficacy in alleviating and treating symptoms. These findings are discussed in relation to the sociological literature on consumerism, risk and reflexivity in health. We argue that our findings exemplify how living with and managing a chronic illness may not be straightforward and the choices of treatment at hand may be limited. Consequently, this may limit the potential opportunities accruing from adopting a reflexive or consumerist approach to managing illness.

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Book Review: Sayantani DasGupta and Marsha Hurst (eds.), Stories of Illness and Healing: Women Write Their Bodies, Kent State University Press, 2007

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Book Review: Joao Biehl, Will to Live: AIDS Therapies and the Politics of Survival, Princeton University Press: Princeton, NJ, 2009; 480 pp.: 13:9780691143859, $26.95 (pbk)

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Enacting death in the intensive care unit: medical technology and the multiple ontologies of death

This article explores various ways health personnel enact death in connection with mechanical ventilation treatment withdrawal in the intensive care unit (ICU) at Trondheim University Hospital. The main focus is on sedated terminal patients who undergo mechanical ventilator treatment withdrawal and relatives’ presence at this time. Mol’s (2002) praxiographic orientation of the actor-network approach is followed while exploring this medical practice. Utilizing this interdisciplinary science and technology studies approach this article describes what Timmermans and Berg (2003) have called ‘ technology-in-practice’. Thus the main focus of the analysis is on medical interventions, and enactments of death within medical practice. The article argues against a ‘social essentialist’ approach to medical technology, which views technology as a passive force empowered by social relations. It explores how various enactments of death are intrinsically linked with and shaped by the use of medical technology within clinical practice. A praxiographic inquiry into how death is enacted carefully takes notice of how medical practice and techniques make death audible, tangible, visible, knowable and real. Mol’s praxiographic approach also enables a description of how the multiple enactments of death connect within end-of-life care through various forms of coordination. This article is based on interviews with 28 nurses and two physicians in a Norwegian intensive care unit.

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A metasynthesis of midwives' experience of hospital practice in publicly funded settings: compliance, resistance and authenticity

Worldwide, increasing percentages of women are giving birth in centralized hospitals in the belief that this maximizes safety for themselves and their babies. In parallel, there is international recognition that the number of birth interventions used in the routine care of labouring women is rising. This is fuelling concern about iatrogenesis, and, particularly, maternal and infant morbidity and mortality. It also has an adverse impact on the economics of health care. National and international policy characterizes midwives as the guardians of normal childbirth. This guardianship appears to be failing. The objective of this metasynthesis is to explore midwives’ perceptions of hospital midwifery with a focus on labour ward practice to examine professional discourses around midwifery work in the current modernist, risk averse and consumerist childbirth context. Based on an iterative search strategy, 14 studies were selected for the metasynthesis. Three overarching themes were identified: ‘power and control’; ‘compliance with cultural norms’; and ‘attempting to normalize birth’. Most midwives aimed to provide what they characterized as ‘real midwifery’ but this intention was often overwhelmed with heavy workloads and the normative pressure to provide equitable care to all women. This raises questions of authenticity, both in terms of midwives living out their beliefs, and in terms of acknowledgement of the power to resist. The theoretical insights generated by the metasynthesis could have resonance for other professional and occupational groups who wish to offer autonomous individualized services in an increasingly risk-averse target driven global society.

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Identities under construction: Women hailed as addicts

Despite continuing investigations of the efficacy of Canadian addiction treatment services and supports across a range of health care settings and socio-cultural groups, many systemic, geographic and ideological barriers to service provision for women still exist. Determining how current services and supports can become more congruent with women’s gender-specific needs is a current research focus. Drawing on Butler’s reformulation of Althusser’s interpellation, this article explores the power of hailing, where hailing power lies, and how hailing operates in discourses about addiction that appear in women’s talk of their encounters with addiction services and supports. The article briefly outlines Butler’s understanding of interpellation and examines ways by which gender operates as both condition and effect in women becoming addicts. I argue that women’s narratives reveal patterns of interaction that intersect and generate complex social meanings and identities, and serve to get women’s attention in terms of seeing themselves as addicts. Further, I argue that powerful competing discourses concerning gender and the medicalization of addiction, hailed through these interactions, are taken up as lived realities by some women and resisted by others. Knowing how women are hailed to take up as their own, or resist, aspects of traditional and gendered discourses within addiction treatment and recovery communities can inform gender-compassionate service provision.

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Spaces of care in the third sector: understanding the effects of professionalization

Increasingly the health and welfare needs of individuals and communities are being met by third sector, or not-for-profit, organizations. Since the 1980s third sector organizations have been subject to significant, sector-wide changes, such as the development of contractual funding and an increasing need to collaborate with governments and other sectors. In particular, the processes of ‘professionalization’ and ‘bureaucratization’ have received significant attention and are now well documented in third sector literature. These processes are often understood to create barriers between organizations and their community groups and neutralize alternative forms of service provision. In this article we provide a case study of an Australian third sector organization undergoing professionalization. The case study draws on ethnographic and qualitative interviews with staff and volunteers at a health-based third sector organization involved in service provision to marginalized community groups. We examine how professionalization alters organizational spaces and dynamics and conclude that professionalized third sector spaces may still be ‘community’ spaces where individuals may give and receive care and services. Moreover, we suggest that these community spaces hold potential for resisting the neutralizing effects of contracting.

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Food allergy and food intolerance: towards a sociological agenda

This article asks what sociological insights an analysis of food allergy and food intolerance might afford. We outline the parameters of debates around food allergy and food intolerance in the immunological, clinical and epidemiological literatures in order to identify analytic strands which might illuminate our sociological understanding of the supposed increase in both. Food allergy and food intolerance are contested and contingent terms and it is salient that the term true food allergy is replete throughout medico-scientific, epidemiological and popular discourses in order to rebuff spurious or ‘nonallergic’ claims of food-related symptoms. Complexity theory is introduced as a means of gaining analytic purchase on the food allergy debate. The article concludes that the use of this perspective provides a contemporary example of the ‘double hermeneutic’, in that the meanings and interpretations of contemporary explanations of food allergy are both permeated by, and can be made sense of, through recourse to complexity thinking.

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Book review: The circulation of children: Kinship, adoption, and morality in Andean Peru Jessaca B. Leinaweaver. Durham, NC: Duke University Press, 2008. ISBN13 978--0--8223--4197--0 (pbk) $US21.95

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Book Review: Injury: The politics of product design and safety law in the United States Sarah S. Lochlann Jain. Princeton, NJ: Princeton University Press, 2006. 214 pp. ISBN 9780691119076 (pbk) $US22.95

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Effects of exposure to the suffering of unknown persons on health-related cognitions, and the role of mood

The purpose of the present study was to examine whether exposure to the suffering of unknown persons, as an inevitable part of life, influences cognitions about health. Our assumption was that exposure to suffering affects cognitions in a negative way, as well as this influence being exerted directly and through negative mood. Eighty-nine participants were randomly assigned to two groups. The experimental group was exposed to a series of photos presenting situations of human suffering, whereas the control group was exposed to a series of photos showing relaxing situations. Participants in the experimental group reported higher health anxiety and health value, and lower internal health locus of control, in comparison to the control group. No differences were found in self-rated health. Exposure to suffering affected cognitions directly and through decrease in positive mood. It seems that an ‘in vitro’ exposure to human suffering activates a cognitive and emotional reaction, which affects evaluations about self and personal well-being.

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Illness explanations among patients with medically unexplained symptoms: different idioms for different contexts

Patients with medically unexplained symptoms (MUS) are often considered to be strictly confined to thinking about their symptoms as having only a physical etiology. However, several studies have shown, that the patients also apply other explanations for their sufferings. The aim of this study is to analyse the social construction of illness explanations among patients with MUS, and to illustrate the use of explanatory idioms as being dependent on space, time and setting, legitimizing each idiom. The study is based on repeated, semi-structured, qualitative interviews with nine informants during a period of 1.5 years. A thematic content analysis was performed on a pragmatic and phenomenological basis. We found, that patients with MUS employ at least four different explanatory idioms defined as: (1) the symptomatic idiom; (2) the personal idiom; (3) the social idiom; and (4) the moral idiom. All idioms play an important role in the process of creating meaning in the patients’ everyday life. The symptomatic idiom is mainly used at clinical consultations in primary care, but it is not the only idiom of significance for the patients. Simultaneously other idioms exist and gradually become important for especially patients with MUS due to the lack of valid diagnoses and treatment opportunities. Clinical settings, however, call for the employment of the symptomatic idiom and a discrepancy is found between the general practitioners’ notion of the bio-psycho-social model and the patients’ everyday life idioms.

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Accounts of disruptions to sexuality following cancer: the perspective of informal carers who are partners of a person with cancer

There is a growing body of research showing that cancer impacts upon the sexuality of informal carers in a couple relationship with a person with cancer. However, this research is primarily focused on partners of a person with gynaecological or breast cancer, within a framework where the physiological effects of cancer on sexual performance are the focus. We conducted semi-structured interviews with 20 informal carers in a couple relationship with a person with cancer, across a range of cancer types. The aim was to explore accounts of changes to sexuality and intimacy post-cancer, in the context of discursive constructions of sexuality and the caring role. Our findings show that partners’ sexual experiences were shaped by absence of desire in the person with cancer; the stress and exhaustion associated with caring tasks; the repositioning of the person with cancer as childlike or as an asexual ‘sick patient’; and the belief that there were expectations about ‘acceptable’ sexual conduct in the context of cancer caring. Carers accepted the diminishment of their sexual relationship, but expressed feelings of disappointment, anger and sadness about this loss. It is concluded that it is vital that support services are developed, so that couples may develop new sexual strategies, and cope more effectively with potential disruptions to their sexual and intimate relationship.

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'A potential fifth column': conflicts and struggles for control in the context of local NHS privatization

This article uses case study data to discuss how a new procurement policy (Local Improvement Finance Trust, or LIFT) in English primary care may affect general practitioners’ control over their work. LIFT, a series of 51 public—private partnerships, will enable over the medium term a shift towards the corporate ownership of surgeries and the creation of polyclinics or ‘onestop-shops’. In this article, I explore the struggles over work autonomy and control within these new LIFT structures, as expressed by clinicians and managers in meetings and in research interviews. More generally, I consider how the findings inform debates over the changing position of professionals within increasingly financialized ‘local health economies’.

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Book review: The making of Our bodies, ourselves: How feminism travels across borders: Kathy Davis. Durham, NC & London: Duke University Press, 2007. 277 pp. ISBN 978 0 8223 4066 9 (pbk) $US22.95

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Book Review: Economics for everyone: A short guide to the economics of capitalism J. Stanford. Black Point, Nova Scotia: Fernwood Publishing, 2008. CAD$24.95

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Call for papers: Special Issue of health: Volume 15, Number 2 Publication date: March 2011 'Another way of knowing: art, disease, and illness experience'

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